--- title: Voices of the Alopecia Areata Patient for the FDA description: Alopecia Areata Patient Opinions For The FDA image: https://blog.baldgirlsdolunch.org/hs-fs/file-2429568613-jpg/FDA_Logos/smallest.FDA.logo5c.jpg --- [![2017_BGDL-Logo-No-Tag-Blog](https://blog.baldgirlsdolunch.org/hubfs/2017_BGDL-Logo-No-Tag-Blog.png "2017_BGDL-Logo-No-Tag-Blog")](https://baldgirlsdolunch.org) **Blog** **Alopecia Areata Support Network** [Visit: Bald Girls Do Lunch](http://baldgirlsdolunch.org) # Women With Alopecia Areata Support Network Blog ## [Voices of the Alopecia Areata Patient for the FDA](https://blog.baldgirlsdolunch.org/voices-of-the-alopecia-areata-patient) Posted by [Thea Chassin](https://blog.baldgirlsdolunch.org/author/thea-chassin) February 2, 2015 at 8:24 PM - [Tweet](https://twitter.com/share) ***![FDA LOGO BLUE](https://blog.baldgirlsdolunch.org/hs-fs/file-2429568613-jpg/FDA_Logos/smallest.FDA.logo5c.jpg?width=130&name=smallest.FDA.logo5c.jpg "FDA LOGO BLUE")*** Your alopecia areata experiences as a patient or parent matter. The FDA is required to acknowledge that too, so we have been clarifying the FDA's role.   In the Fall of 2014 when the FDA chose to ask for AA patient input, we stepped up to the plate wearing our favorite AA advocate hat. - [We explained](//blog.baldgirlsdolunch.org/submit-your-alopecia-feedback-to-the-fda?&__hssc=267947921.3.1422905844661&__hstc=267947921.5b46550c965f5d694d10e0c4865313bd.1413820599554.1422890472800.1422905844661.113&hsCtaTracking=22eae77a-8736-4fb5-b6ff-bd89a42edb5a|3d5d836c-0dba-4a17-ab17-ad9c6672d2f2) and you responded.  Our network rocks! - Then, we assembled a compelling [submission of your verbatim comments](http://www.regulations.gov/#!documentDetail;D=FDA-2012-N-0967-0680)in support of AA as a session topic for the PDUFA-V (Prescription Drug User Fee Act) renewal that requires patient-focused workshops. (open the PDF at the bottom of the comments page) - AA is just one of many diseases that might be selected for additional patient input. Time will tell. Our deepest thanks for the honest feedback of our participants and those who sumitted on their own. On [facebook](http://www.facebook.com/baldgirlsdolunch) a friend of Bald Girls Do Lunch said "*These are very powerful*" and we couldn't agree more! Our document is public at Regulations.gov. We hope you will have a look and [share the link](http://www.regulations.gov/#!documentDetail;D=FDA-2012-N-0967-0680). Here's a sample of what our subscribers said: - I have alopecia universalis and it affects me every day in so many ways. - I no longer engage in activities and social events that I used to because i feel embarrassed about my appearance. - I miss my old life and am constantly trying to figure out how to conceal my hair loss....that being said, I would not take a medication that would pose a risk to my health - It's a devasting diagnosis, especially for women. We need help to find a viable living situation. - My child is in a world where unfamiliar adults assume that she is sick and unfamiliar children are very cruel. - The treatments that are available have not worked at all for me. [![Join Our List Alopecia Support That Works](https://no-cache.hubspot.com/cta/default/358343/5bce7e5d-41c3-4aa5-b2e8-69a2aa4f535a.png)](https://cta-redirect.hubspot.com/cta/redirect/358343/5bce7e5d-41c3-4aa5-b2e8-69a2aa4f535a)   We will continue to follow updates for renewal of the PDUFA-V and alert you when the diseases that are chosen for session workshops in FY2016-17 are announced.               Topics: [alopecia medical articles](https://blog.baldgirlsdolunch.org/topic/alopecia-medical-articles) ### Subscribe to Blog Updates ### Recent Posts ### Posts by Topic - [alopecia advice (1)](https://blog.baldgirlsdolunch.org/topic/alopecia-advice) - [alopecia areata (3)](https://blog.baldgirlsdolunch.org/topic/alopecia-areata) - [alopecia areata advice (2)](https://blog.baldgirlsdolunch.org/topic/alopecia-areata-advice) - [alopecia areata in children (1)](https://blog.baldgirlsdolunch.org/topic/alopecia-areata-in-children) - [alopecia areata in girls (1)](https://blog.baldgirlsdolunch.org/topic/alopecia-areata-in-girls) - [alopecia awareness (13)](https://blog.baldgirlsdolunch.org/topic/alopecia-awareness) - [alopecia beauty tips (3)](https://blog.baldgirlsdolunch.org/topic/alopecia-beauty-tips) - [alopecia makeup (4)](https://blog.baldgirlsdolunch.org/topic/alopecia-makeup) - [alopecia medical articles (10)](https://blog.baldgirlsdolunch.org/topic/alopecia-medical-articles) - [alopecia medical news (6)](https://blog.baldgirlsdolunch.org/topic/alopecia-medical-news) - [alopecia medical resources (7)](https://blog.baldgirlsdolunch.org/topic/alopecia-medical-resources) - [alopecia month (1)](https://blog.baldgirlsdolunch.org/topic/alopecia-month) - [alopecia research (3)](https://blog.baldgirlsdolunch.org/topic/alopecia-research) - [alopecia style (1)](https://blog.baldgirlsdolunch.org/topic/alopecia-style) - [alopecia style tips (5)](https://blog.baldgirlsdolunch.org/topic/alopecia-style-tips) - [alopecia tips (1)](https://blog.baldgirlsdolunch.org/topic/alopecia-tips) - [alopecia wigs (6)](https://blog.baldgirlsdolunch.org/topic/alopecia-wigs) - [children and alopecia (3)](https://blog.baldgirlsdolunch.org/topic/children-and-alopecia) - [children with alopecia areata (1)](https://blog.baldgirlsdolunch.org/topic/children-with-alopecia-areata) - [coping with alopecia (27)](https://blog.baldgirlsdolunch.org/topic/coping-with-alopecia) - [dating with alopecia (2)](https://blog.baldgirlsdolunch.org/topic/dating-with-alopecia) - [gender bias (1)](https://blog.baldgirlsdolunch.org/topic/gender-bias) - [hair loss in children (1)](https://blog.baldgirlsdolunch.org/topic/hair-loss-in-children) - [head shave (1)](https://blog.baldgirlsdolunch.org/topic/head-shave) - [infographic about alopecia (1)](https://blog.baldgirlsdolunch.org/topic/infographic-about-alopecia) - [kids with alopecia areata (1)](https://blog.baldgirlsdolunch.org/topic/kids-with-alopecia-areata) - [real talk for women with alopecia (1)](https://blog.baldgirlsdolunch.org/topic/real-talk-for-women-with-alopecia) - [research for alopecia treatment (3)](https://blog.baldgirlsdolunch.org/topic/research-for-alopecia-treatment) - [shaving your head (3)](https://blog.baldgirlsdolunch.org/topic/shaving-your-head) - [skin and alopecia (7)](https://blog.baldgirlsdolunch.org/topic/skin-and-alopecia) - [stories of women with alopecia (29)](https://blog.baldgirlsdolunch.org/topic/stories-of-women-with-alopecia) - [talk about alopecia (1)](https://blog.baldgirlsdolunch.org/topic/talk-about-alopecia) - [talking about alopecia (18)](https://blog.baldgirlsdolunch.org/topic/talking-about-alopecia) - [volunteers (2)](https://blog.baldgirlsdolunch.org/topic/volunteers) - [wig manufacturers (1)](https://blog.baldgirlsdolunch.org/topic/wig-manufacturers) - [wigs for women (4)](https://blog.baldgirlsdolunch.org/topic/wigs-for-women) - [women living with alopecia (29)](https://blog.baldgirlsdolunch.org/topic/women-living-with-alopecia) Copyright (c) 2026 Bald Girls Do Lunch, Inc. All rights reserved. | [Privacy Policy](https://www.baldgirlsdolunch.org/?page_id=19#3) | [Medical Disclaimer](https://www.baldgirlsdolunch.org/?page_id=19#1) This material is protected by copyright. It may not be reproduced in whole or in part without the written permission of Bald Girls Do Lunch, Inc.  ```json { "@context" : "https://schema.org", "@type" : "BlogPosting", "author" : { "@type" : "Person", "name" : "Thea Chassin", "url" : "https://blog.baldgirlsdolunch.org/author/thea-chassin" }, "datePublished" : "2015-02-03T01:24:00.000Z", "headline" : "Voices of the Alopecia Areata Patient for the FDA", "image" : [ "https://blog.baldgirlsdolunch.org/hs-fs/file-2429568613-jpg/FDA_Logos/smallest.FDA.logo5c.jpg" ], "mainEntityOfPage" : { "@id" : "https://blog.baldgirlsdolunch.org/voices-of-the-alopecia-areata-patient", "@type" : "WebPage" }, "publisher" : { "@type" : "Organization", "logo" : { "@type" : "ImageObject", "url" : "https://blog.baldgirlsdolunch.org/hubfs/2017_BGDL-Logo-No-Tag-Email-160.jpg" }, "name" : "bald girls do lunch" } } ```